Thursday, June 10, 2010

we are walking to raise awareness for Crohns

Crohn's disease has been a big part of our lives since Desi was diagnosed with it at age 7.For the past 10 years we have had some rough times.Desi spent 3 weeks at Strong in 2004 struggling to stabalize his systems,when eft he was taking 18 pills a day as well as a weekly trip to Strong for an methadextrate injection.These weekly trips continued until mid 2008 wh methadextrate injection.These weekly trips continued until mid 2008 wh we were able to go to 10 weeks between his remicade (8 hr IV treatment).Sadly Des has been relasping a bit so it is now every 7 wks treatment).Sadly Des has been relasping a bit so it is now every 7 wks. Your donation will help support local patient programs, as well as important research projects. This cause is very important to me and I appreciate your support of this event. There will be food, music and kid's activities. The more money we raise, the closer we will be to making life more manageable for patients ive with these diseases every day Please join me or donate to my efforts to support CCFA in finding a cureThis summer, we will be walking in the Take Steps for Crohn's & Colitis Walk. Take Steps is CCFA's national evening walk and celebration and the celebration and the nation's largest event dedicated to finding cures for digestive diseases. It is a casual 2-3 mile stroll to raise money for crucial research, bringing us closer to a future free from Crohn's disease and ulcerative colitis. Over 1.4 million American adults and children are affected by these digestive diseases. While many suffer in silence, Take Steps brings together this community in a fun and energetic atmosphere, encouraging them to make noise and be heard. Thanks http://online.ccfa.org/site/TR/Walk/Chapter-Rochester?team_id=81060&pg=team&fr_id=1789

Friday, May 7, 2010

catching up- St Patrick's day




Zoe seemed to really enjoy St paddys day.She was decked out in green and orange and we make shamrock tiaras for all the girls in her class.She also came home looking quite a bit Irish . I of course did my best to celebrate with green beer

Saturday, February 20, 2010

Zoe starts kindergarten


Zoe and I rode the bus to school the day before to see her classroom and meet her teacher Mrs. Bennett. Zoe was happy to see that her friends Emily and Luke were also in the class.She also met Amanda the woman in charge of the before school daycare that Zoe will be going to on most days. Zoe has to get up at 5:30 with her brothers and then ride the bus with them as i am at work.The boys seem to be doing a great job finishing getting her ready. I do her hair the night before and have her clothes set out to make the morning as easy as possible. Zoe picked out her 1st day clothes and was super excited.I was able to be home that first morning to snap pictures as well as when they arrived back home in the afternoon. Zoe loved daycare,school and lunch.She really enjoys Mr Whalley the music teacher who actually was my music teacher and he does not even look a day older .The boys also seem to like school on the first day. Desmond is a JUNIOR (WOW)this year and Tevin a sophmore.Amazing how fast the years go by...

Zoe's Summer Vacation






Zoe and I had a great weekend at FCC's China Culture Camp at Keuka College the first weekend in August. We stayed in a dorm finally I thought i will sleep well in my own bed but nope we immediately pushed the beds together so I had the thrasher with me once again. Zoe seemed to have fun and was all excited about the get to know dance, showing me in the room all of her moves but then just sat there like a grump. Turns out Zoe likes to dance but does not like to be told how to dance. This seems to be a recurring theme with her lately. She made friends with a few of the kids and I talked to several moms hopefully next year we will be more social. Zoe learned about chinese communications.We really enjoyed our weekend away and look forward to next year.