Thursday, June 10, 2010

we are walking to raise awareness for Crohns

Crohn's disease has been a big part of our lives since Desi was diagnosed with it at age 7.For the past 10 years we have had some rough times.Desi spent 3 weeks at Strong in 2004 struggling to stabalize his systems,when eft he was taking 18 pills a day as well as a weekly trip to Strong for an methadextrate injection.These weekly trips continued until mid 2008 wh methadextrate injection.These weekly trips continued until mid 2008 wh we were able to go to 10 weeks between his remicade (8 hr IV treatment).Sadly Des has been relasping a bit so it is now every 7 wks treatment).Sadly Des has been relasping a bit so it is now every 7 wks. Your donation will help support local patient programs, as well as important research projects. This cause is very important to me and I appreciate your support of this event. There will be food, music and kid's activities. The more money we raise, the closer we will be to making life more manageable for patients ive with these diseases every day Please join me or donate to my efforts to support CCFA in finding a cureThis summer, we will be walking in the Take Steps for Crohn's & Colitis Walk. Take Steps is CCFA's national evening walk and celebration and the celebration and the nation's largest event dedicated to finding cures for digestive diseases. It is a casual 2-3 mile stroll to raise money for crucial research, bringing us closer to a future free from Crohn's disease and ulcerative colitis. Over 1.4 million American adults and children are affected by these digestive diseases. While many suffer in silence, Take Steps brings together this community in a fun and energetic atmosphere, encouraging them to make noise and be heard. Thanks http://online.ccfa.org/site/TR/Walk/Chapter-Rochester?team_id=81060&pg=team&fr_id=1789

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